Just wanted to share a little miracle

bkokc00 · **Posted:** 01 Nov 2009 18:19

Asher was released from the hospital on friday, they had planned to do surgery at noon on friday and put in a g-tube, but his white bloodcell count was low so they cancelled the surgery, when i made it to the hospital my daughter said: well guess we are going home today. Well that was a surprise, i wasn't prepared at all. They are staying with me for a few days before going back to their apartment, he still has a feeding tube thru the nose, she will find out wednesday when they are doing the g-tube. My daughter will have her hands full, i offered to let her sleep last night and me take care of him..well i got 2 hours of sleep lol.
She had already bought a halloween costume but of course we were not gonna take him outside and walk around and be around lots of people..so we put on the costume and took some pics outside and that was about it...but here is my little miracle boy

couponprincess · **Posted:** 01 Nov 2009 22:28

He makes a cute giraffe.. Remember if you need anything let me know! I will keep praying.

tlv1122 · **Posted:** 03 Nov 2009 14:23

What a beautiful child!

karen lea · **Posted:** 05 Nov 2009 13:50

Britta that is the most adorable baby!!! I have said that since you put the pic up from Christmas last year. I am so glad that he got to enjoy a little bit of Halloween!!!

bkokc00 · **Posted:** 05 Nov 2009 19:58

Ty all..well he pulled the feeding tube out a few days later but we ended up getting him to take a bottle with pediasure in it, so docs decided no need to put the tube back in the nose and they cancelled the g-tube..so happy.
We saw the oncologist yesterday. She suggested for Asher to go thru radiation for 6 weeks, 5 days a week. He will go to another facility to do this radiation because it is something called Proton Radiation Therapy. The difference between old style and Proton is that with the old style the radiation treatment damages anything in the way including healthy tissue. Proton is a new type of radation that minimizes damage and has a more powerful effect. The doctor is trying to get rid of any bad tissue that surrounded the tumor. Ashers pituitary gland will be damaged during this treatment and he'll require to take hormones for the rest of his life. The doctor said she thinks it's worth it, if this tumor returns it would mean another brain surgery and she said the chances of them being able to remove the whole tumor again are very slim. We are very greatful that OKC is offering this new type of treatment, i heard that it's 1 out of 6 machines in the whole USA. So keep praying for my little buddy Asher!

karen lea · **Posted:** 07 Nov 2009 00:52

I am so happy that he doesn't have to have a feeding tube any longer. Maybe things are looking up for Asher. You are in my thoughts!!

Just wanted to share a little miracle

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